Please let me know if you also suffer from Chronic Fatigue Syndrome and how it affects your days. They call themselves “spoonies.” This compares the amount of energy they have each day in terms of the number of “spoons” they have. This lack of understanding of women’s pain plays a big role in the amount of time it takes to even receive a diagnosis of fibromyalgia. I used to be an extremely active person, always on the go, and so this was a nightmare for me. On the other hand, this is not a complete list. Some compare it to working long hours and missing a lot of sleep. It could travel throughout your body. However, I am not as strong as I used to be. MedicineNet also reports that: “Fibromyalgia can occur by itself, but people with certain other diseases, such as rheumatoid arthritis, lupus, and other types of arthritis, may be more likely to have it.”. Exhaustion is so synonymous with fibro that some experts believe that without sleep disruption and chronic fatigue, it cannot be considered a true case of fibromyalgia. Here are a few that are particularly difficult to talk about. If a fibromyalgia patient has ten spoons for a day and they use eight getting ready for work, they know they have to make adjustments to rest of their day. With fibromyalgia in women being much more prominent, it would be easy to assume that men don’t experience it. It occurs most commonly in women 20 to 50 years old. My eldest daughter is wanting to introduce game nights where all the family and their partners can come together and enjoy an evening with games. I seem to have alot in my head and got so so sick of hearing that the symptoms i had at a very young aage was and now this fibro thing my life was not ment to endure so much pain but yet i know i am blessed to be an american and now i ask why when it is so sapressed here now unless you have more money than cence. The muscles and joints of their back, arms, and legs feel stiff. If you suffer from widespread pain, fatigue, and mental issues, though, you could be experiencing fibro. I’m so sorry to hear that you had to go back on certain medication, after stopping all your meds and feeling better. By that I mean "young", not just "short". Am I tired due to restless sleep? As a result, I lie in bed watching movies or series until the time is right to take my medication to sleep. Have you managed to find anything that helps you deal with it? You can unsubscribe at any time. Seven military exercises to ramp up your home workout routine, How I coped with being made redundant during a pandemic, How to cope with coronavirus vaccine anxiety, Why it’s so important for Black and Asian people to access therapists of colour, Mum-of-seven with terminal cancer competes in bodybuilding competition to tick off bucket list. While sensory overload is not a symptom unique to Fibromyalgia, it is common. They may also be caused by tender points over the back of your head and neck. I’m adopted the attitude, if I wake up and can get a few things done I do, if not it will have to wait. Many people with fibro -- also called fibromyalgia syndrome or FMS -- may have: Almost all people with fibromyalgia ache all over. This includes many different cognitive difficulties, such as: This fibro fog is usually caused by overstimulation, high stress, lack of sleep, and some medications. And that’s a good thing! I’ve often forced myself to do it, but then there are the days that it’s just impossible as I can barely get out of bed. This is usually what makes you go see your doctor. Hi Rita — We are so sorry to hear about that. It could include any of the following 27 fibromyalgia symptoms: Knowing these symptoms and if they affect you can help when it comes to diagnosis. I’ve suffered from insomnia ever since I got Fibromyalgia. I hope this has helped people to understand me a bit better. On the one hand you could be thinking “man, are there 14 symptoms? Doctors diagnose fibromyalgia by 18 tender points on the body. There are a couple other tidbits that go alongside Fibromyalgia (as if 14 wasn’t enough!). Over a month, maybe weather doesn’t make a difference. I have not one person doctor that i can talk to i have lost almost every thing i ever cared about or loved because of one thing or the other but my pets and sometimes i think they want to run because they feel my pain. My husband understands it and supports me 100%, but I’m quite sure that he’d like things to be different. It's the tissue around the muscles and joints that hurts rather than the joints themselves. All rights reserved. This could be due to fatigue certainly, but is also a separate symptom of this syndrome. I’m currently representing myself in Federal Court, sueing SSA for my disability because neither MY lawyer or the judge believed that Fibro was real. The majority of people with fibromyalgia have trouble sleeping. ↑ Post Menu. The National Fibromyalgia and Chronic Pain Association reports that the following could all affect pain levels: People with fibromyalgia describe their pain as a stiffness or aching starting in specific areas. Having done some research, it is hard to determine if Fibromyalgia causes a poor-functioning immune system, or whether people with Fibromyalgia symptoms simply get other illnesses much easier. It doesn’t work like the first one that I take in the morning. Some patients even experience extreme migraine pain. It may hurt, but more often it feels like you need to move your legs to try to make them comfortable. The pain can be deep, sharp, dull, throbbing, or aching. Fibromyalgia is a widespread chronic pain syndrome. I sadly cannot do that due to the fatigue I experience in the evenings. However, stress from other internal and external sources can massively affect my pain levels. I have to balance which symptoms I would rather manage. Patients with fibromyalgia lack the deep, restorative level of sleep, called non-rapid eye movement (NREM) sleep. 10 things people with fibromyalgia want you to know, How I came to terms with my chronic illness diagnosis. Fibro is life-impacting and, in some senses, life-restricting. Many fibromyalgia patients also suffer from gastrointestinal issues. Fibromyalgia also has the tendency to wax and wane. If you continue browsing we consider you accept the use of cookies. I was so happy when I was finally able to get into bed and rest. Others may feel these fibromyalgia tender points nearly all of the time. I do get chills but seldom feel real feverish. Thank you so much for being there for me and, however you support me, I’m hugely grateful! “When I say ‘I’m tired’ it often means I’m in pain and I don’t feel like explaining it or justifying it to people who will inevitably ask questions. Often it just comes out of nowhere and there I’m bedridden again. And I’ve likely forgotten things that I deal with, or I handle as one issue but may be two. Irritability is one of the most common manifestations of this and this sensitivity can greatly increase with a lack of sleep. Here are a few that are particularly difficult to talk about. 6 Strange Signs of Fibromyalgia. National Institute of Arthritis and Musculoskeletal and Skin Diseases: "Fibromyalgia. Women in peak childbearing years (20 to 40) are diagnosed with fibromyalgia at a much higher rate than any other segment of the population in the U.S. Every person is different but share some of the same symptoms at times. The daily lifestyle email from Questions to Ask Your Doctor About Fibromyalgia and Chronic Fatigue Syndrome, Video: Fibromyalgia Symptoms and Treatments, Concentration and memory problems, known as "fibro fog". How to give those in need essential hygiene products this Christmas, 60% of black people feel they are treated unequally by NHS, report finds, What we now know about the effect of Covid on our lungs weeks after recovery. Mental Health First Aid – what is it and how can I do it? Fibro Jedi is grateful to have the support of 20 Patrons which helps me to keep making new things here! I find codeine helps with my pain but it makes my constipation worse meaning my abdomen feels uncomfortable. Fibromyalgia is a widespread chronic pain syndrome. This undoubtedly affects the efficacy of medications for them. So one day, I decided to take a Ritalin myself in order to see exactly what it did. They do, and their burden is just as difficult. ), It’s Okay to Not Be Okay – an Update from FJ, SWTOR KotET Blog Posts – Knights of the Eternal Throne. Change ), You are commenting using your Google account. Brain fog is a major problem and chronic pain. One of the weirdest aspects of having Fibromyalgia is that I have really over-tuned sound sensitivity. Sometimes the pain fluctuates with their menstrual cycle. Wellbutrin can give you some energy in the morning after taking it. It is often paired with other diseases like CFS/ME, lupus, adrenal fatigue, or autoimmune diseases. I personally prefer the word “disorder” to “disease”. I need reminding of things semi-frequently. My nervous system is over-sensitive (to use a gaming term, it is not Working As Intended) and my brain basically tells parts of my body to hurt. Oh, and too much time in bed makes my pain so much worse so I have to choose either to risk more pain or be more tired. We do recommend reaching out to a pain specialist for help. Thank you! Hand pain, when it’s bad affects my ability to blog, write fiction and even which game I play. Privacy Policy   |   Membership   |   DONATE, The information in this website is not a substitute for professional medical advice.Please always consult with your physician on matters concerning your medical care and treatment.